Friends and Family - Your Guide to Food Allergies

With the holidays in full force that equates to food and parties and navigating to keep you safe!

It takes a village. I would love for others to be more understanding and less judgy - for example, I get lots of eye-rolls when I am incessant about hand washing, yes with soap and water pre-eating and post-eating, every meal and every snack. That includes others that probably ate/touched foods you are allergic to and then they touch you, play with you, share toys, phones, etc. Sadly, you have had a reaction simply from others not washing their hands properly after a meal.

At this point in the game, I DO NOT care what others think about the way I parent you. It is my duty to keep you safe, alive and thriving.  Although, it would be grand if others were more understanding. I did come across a nicely written piece that does define great pointers for grandparents, which carries over to family and friends. I encourage everyone that loves you Jahan, to read this.

• We’ve been told that “It takes a village” to raise a child and that certainly is the case for a child with food allergies.  As a grandparent, you naturally want the best for your grandchildren, yet the notion of a life-threatening allergy to an innocent food can be hard to grasp.
  
  If your grandchild has been diagnosed with food allergies, you must take this medical diagnosis very seriously. Even if he or she is one of the lucky ones who will eventually outgrow the allergy, it is crucial that you err on the side of caution.
  
  Leading pediatric allergist Dr. Robert Wood of Johns Hopkins explained that “One of the most common causes of reactions in allergic children is related to food being provided by the grandparents who never really understood or believed the notion that their grandchild had this severe food allergy.” 
  
  The good news is that studies have shown that when caregivers are trained in avoiding, recognizing and treating allergic reactions, the frequency and severity of these reactions decreases.   The following tips can help you to ease the burden on your loved ones and will enable you to become a more reliable caregiver.
  
  1.    Abide by their rules—even if you don’t understand them.  Since the day their child was diagnosed, your son or daughter has been learning a new way of life with severe food allergies. There are a lot of ambiguities and there is a lot of stress.  Assume that the parents know best.  You won’t get a chance for a “do-over” if your grandchild has a reaction.
  
  2.    Doctor’s orders  Let your grandchild’s physician handle his or her medical care.  Allergy parents are bombarded with hokey tips and media stories of treatments and cures involving everything from worms, to herbs, to acupuncture.  Some of this research is very promising but for now, assume your grandchild is in good hands with his current physician.                     
  3.    Engage but don’t overstep. I read once that grandparents are like pinch hitters. They need to sit on the bench until they’re called up. Allergy parents (especially after a recent reaction or diagnosis) often have a lot of anxiety over their child’s condition.  If you are asked and are able to help, fantastic. But unless you truly believe your grandchild is in danger, don’t suggest alternative ways of managing allergies.
  
  4.     Pick your battles!  Holidays are one of the most challenging times for allergy families. Prioritize. What is the most important thing about the holidays? As Suze Orman says “People first.”  Yes, you want to make your traditional nut braid and thumb print cookies, but believe me, you can have a festive and loving holiday without cookies, candy, mashed potatoes, even pumpkin pie. But you can’t have a glorious family holiday if one family is missing. So think and think again about what’s most important.
  
  5.    Phone Home Ask an allergy mom where the phone is when she takes a shower, and 99% of them will tell you that it’s right outside the shower door. Most of us have gotten that call about an allergic reaction at one time or another. And when we’re leaving our child with a caregiver, our fingers have a mind of their own and we need to make that call to check in.  So when you are caring for your grandchildren, keep your phone within reach at all times.
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• 6.    Serve it our way.  You may have a swell idea about how to reheat little Johnny’s dinner but you did not realize that they spray you just put in the pan contained dairy.  You saw Alicia eating strawberry sorbet last month. You didn’t realize that the brand you purchased is processed on lines with butter pecan ice cream. Daniel’s noodles tasted so bland, you thought you’d add a little seasoning, not realizing that it contains wheat. Well-meaning people who are not accustomed to living with food allergies can easily make a dangerous mistake and put a child at risk. Hidden ingredients and cross-contamination have caused serious, even fatal reactions. Do yourself a favor, and serve your grandchild only the foods that his parents have approved and serve them in exactly the way they’ve asked.
  
  7.    Emotions count  You may find yourself thinking that your son or daughter is going overboard with precautions or restrictions. Perhaps you believe that they could safely attend a family picnic, vacation or wedding. You may be right. But consider the family’s emotional heath and stress level, especially if the child was recently diagnosed. Sometimes the anxiety level in the home is so high, that it is just not worth all of the preparations and worry about an event.  Sometimes it’s better to decline a stressful invitation and keep the family safe and calm at home.  The emotional well-being of the family members is as important as their physical health.
  
  8.    Get support for yourself   Recently, my mother explained that a good friend of hers was a tremendous support to her after my son was diagnosed. I’m embarrassed to admit that I actually thought “Why would you need support?”  And then the light bulb went off and I realized that my mother, my son’s grandmother, had also gone through the myriad of emotions that follows a scary diagnosis. Once you really grasp the severity of this life-changing medical condition, it can be overwhelming. So if you find yourself feeling  sad, or scared or grieving about your grandchild’s condition, get the help and support that you need from friends, your spouse or a mental health professional. 
  
  These tips are not a substitute for learning about food allergies, and how to avoid, recognize and treat an allergic reaction. However, if you show the willingness to become an informed caregiver, you will go a long way in alleviating the stress and allowing your son or daughter some much needed time off duty. Your concern will nurture and strengthen your relationship with the entire family. Isn’t that what grandparenting is all about?

One more point I would like to make - 1) Do not pity Jahan - you are not a victim. You were made this way. Mommy and daddy are moving mountains to unravel and "fix" your immune system.  We will celebrate the holidays in the coming years without food allergies. Maybe not this year, but soon.

"How Do You Do It?"

Friends often ask me, "How do you do it?" Before I can answer, they often answer their own question, "I don't know how you do it."  I honestly don't know how I do it. What even is "it"...it's a lot.

Having a child with a chronic health issue is the most challenging thing I have ever gone thru and continue to go thru. Every day. Every party. Every play date. Every meal. Every label. Every bite. Every single damn ingredient. I would be lying if I said it's easy. It's incredibly challenging to be that parent.

You see Jahan, all I want for you is normalcy. I try so hard every day to fight for that. In your school, your classroom, with your friends, your family, at the table, at the restaurant.  I yearn for this for my baby.  We DO NOT believe in wrapping you in a little bubble, requesting food bans, which would impact so many others. Accomplishing this means, you are around foods so close in proximity to you, that it could do serious harm, as we have seen.  As your parent, I am trying to keep you safe, that means I feel the burden, the stress, the what-if.  Trying to educate others, I am often viewed as overbearing, overreacting, a helicopter mom and the list goes on, mostly negative. It is a hard journey.  Co-parenting is equally challenging.  Daddy and I will continue to be diligent in maintaining your safety and also your quality or life, including relationships and experiences.  Then there will be new challenges that OIT will bring. Many in fact. For starters:

• Will we all relocate to California? The thought of separating you from Emrys breaks my heart.
• Will we stay in Maryland and travel back and forth to California every few weeks for the duration of the treatment that takes years?
• Will you be successful with this treatment plan? Will we be successful?
• How will we manage your schooling while in treatment?

The list goes on and on. I don't know what we will do or how we will do it, but we will do it and you will ride off into the sunset, free from these shackles. 

Super Foods - Part 1

As Hippocrates once said, "let food be thy medicine."  Despite Jahan's multiple food allergies, which will all be treated starting in the next 24-30 months using OIT, food is the best option for medicine. Food will address the most pertinent issues (excluding the allergies) currently plaguing his two year old body. Leaky gut, inflammation, the presence of pathogens, unacceptably low levels of of good bacteria and eczema can all begin to heal by eliminating the inflammatory foods, ingesting a diversity of fruits and vegetables and taking daily vitamins and supplements.

While none of us are doctors, my husband and I have consulted with multiple functional doctors, functional/holistic dietitians, allergists and dermatologists and we have compiled a list of some of the best foods to help obtain optimal gut health based on their recommendations and our personal results.

Getting your two year old to actually consciously eat these foods or any foods other than juice, pasta and milk is an entirely separate and equally challenging endeavor.  Consider yourselves extremely blessed if your toddler is eager to eat and try new and different foods.

Here is part 1 in the Super Foods Series

1. Jicama - If an apple and a potato had a baby, Jicama would be the result.  This starchy tuber is packed with vitamins and minerals, especially vitamin C. Vitamin C is great for boosting the immune system of which a whooping two-thirds is located in the gut.  Jicama contains a prebiotic called inulin. Probiotics seem to get all the love these days, but prebiotics are ultra important too because they are food for the good bacteria.  If you don't feed the probiotics, they go away. Prebiotics promote the growth of the good bacteria in the gut. Jicama is refreshing raw sliced in a salad, added to a smoothie or cooked like any style potato you may fancy.  
2. Sweet potato - This starchy tuber is the gift that keeps on giving. Sweet potatoes provide high amounts of sustained energy without causing the body to spike.  Sweet potatoes are a also a prebiotic, so the good bacteria feeds off of these. Sweet potatoes are delicious baked, steamed or fried. 
3. Turmeric - This spice is used daily in our house. Turmeric is very commonly used in Indian cuisine, but word is spreading about this 8th wonder of the world. Turmeric is known for it's anti-inflammatory properties and can be used to treat a wide variety of digestive inflammatory diseases including Crohn's disease, irritable bowel syndrome (IBS) and indigestion.  Turmeric can be added to smoothies or sprinkled on potatoes.  We simply add to our toddler's milk at each serving and he gladly downs it. 
4. Salmon (wild caught) - All salmon are NOT created equal.  Farmed and wild salmon may look similar, but farmed salmon are loaded with antibiotics, which are extremely harmful to the gut flora's environment.  In addition to that, wild salmon has more protein and less fat per serving, less toxic compounds and lacks the artificial coloring that farmed salmon contains.  Oh and the taste, there is no comparison.                      
5. Plantain - A resistant starch. What does this mean?  Without getting too scientific, plantains resist being absorbed as sugar, instead, these starches travel to the small intestine where they are turned into a short-chain fatty acids, which provide energy to the cells in the colon.  Inflammation reduction also occurs.  Green plantains are delicious fried. This Puerto Rican version is similar to how I cook them at home. 

Stay tuned for more posts in the Super Foods Series.