Showing posts with label Oral Immunotherapy. Show all posts
Showing posts with label Oral Immunotherapy. Show all posts

November 14, 2016

"How Do You Do It?"

Friends often ask me, "How do you do it?" Before I can answer, they often answer their own question, "I don't know how you do it."  I honestly don't know how I do it. What even is "it"...it's a lot.

Having a child with a chronic health issue is the most challenging thing I have ever gone thru and continue to go thru. Every day. Every party. Every play date. Every meal. Every label. Every bite. Every single damn ingredient. I would be lying if I said it's easy. It's incredibly challenging to be that parent.

You see Jahan, all I want for you is normalcy. I try so hard every day to fight for that. In your school, your classroom, with your friends, your family, at the table, at the restaurant.  I yearn for this for my baby.  We DO NOT believe in wrapping you in a little bubble, requesting food bans, which would impact so many others. Accomplishing this means, you are around foods so close in proximity to you, that it could do serious harm, as we have seen.  As your parent, I am trying to keep you safe, that means I feel the burden, the stress, the what-if.  Trying to educate others, I am often viewed as overbearing, overreacting, a helicopter mom and the list goes on, mostly negative. It is a hard journey.  Co-parenting is equally challenging.  Daddy and I will continue to be diligent in maintaining your safety and also your quality or life, including relationships and experiences.  Then there will be new challenges that OIT will bring. Many in fact. For starters:

  • Will we all relocate to California? The thought of separating you from Emrys breaks my heart.
  • Will we stay in Maryland and travel back and forth to California every few weeks for the duration of the treatment that takes years?
  • Will you be successful with this treatment plan? Will we be successful?
  • How will we manage your schooling while in treatment?
The list goes on and on. I don't know what we will do or how we will do it, but we will do it and you will ride off into the sunset, free from these shackles. 





August 23, 2016

Super Foods - Part 1

As Hippocrates once said, "let food be thy medicine."  Despite Jahan's multiple food allergies, which will all be treated starting in the next 24-30 months using OIT, food is the best option for medicine. Food will address the most pertinent issues (excluding the allergies) currently plaguing his two year old body. Leaky gut, inflammation, the presence of pathogens, unacceptably low levels of of good bacteria and eczema can all begin to heal by eliminating the inflammatory foods, ingesting a diversity of fruits and vegetables and taking daily vitamins and supplements.

While none of us are doctors, my husband and I have consulted with multiple functional doctors, functional/holistic dietitians, allergists and dermatologists and we have compiled a list of some of the best foods to help obtain optimal gut health based on their recommendations and our personal results.

Getting your two year old to actually consciously eat these foods or any foods other than juice, pasta and milk is an entirely separate and equally challenging endeavor.  Consider yourselves extremely blessed if your toddler is eager to eat and try new and different foods.

Here is part 1 in the Super Foods Series

  1. Jicama - If an apple and a potato had a baby, Jicama would be the result.  This starchy tuber is packed with vitamins and minerals, especially vitamin C. Vitamin C is great for boosting the immune system of which a whooping two-thirds is located in the gut.  Jicama contains a prebiotic called inulin. Probiotics seem to get all the love these days, but prebiotics are ultra important too because they are food for the good bacteria.  If you don't feed the probiotics, they go away. Prebiotics promote the growth of the good bacteria in the gut. Jicama is refreshing raw sliced in a salad, added to a smoothie or cooked like any style potato you may fancy.  
  2. Sweet potato - This starchy tuber is the gift that keeps on giving. Sweet potatoes provide high amounts of sustained energy without causing the body to spike.  Sweet potatoes are a also a prebiotic, so the good bacteria feeds off of these. Sweet potatoes are delicious baked, steamed or fried. 
  3. Turmeric - This spice is used daily in our house. Turmeric is very commonly used in Indian cuisine, but word is spreading about this 8th wonder of the world. Turmeric is known for it's anti-inflammatory properties and can be used to treat a wide variety of digestive inflammatory diseases including Crohn's disease, irritable bowel syndrome (IBS) and indigestion.  Turmeric can be added to smoothies or sprinkled on potatoes.  We simply add to our toddler's milk at each serving and he gladly downs it. 
  4. Salmon (wild caught) - All salmon are NOT created equal.  Farmed and wild salmon may look similar, but farmed salmon are loaded with antibiotics, which are extremely harmful to the gut flora's environment.  In addition to that, wild salmon has more protein and less fat per serving, less toxic compounds and lacks the artificial coloring that farmed salmon contains.  Oh and the taste, there is no comparison.                      
  5. Plantain - A resistant starch. What does this mean?  Without getting too scientific, plantains resist being absorbed as sugar, instead, these starches travel to the small intestine where they are turned into a short-chain fatty acids, which provide energy to the cells in the colon.  Inflammation reduction also occurs.  Green plantains are delicious fried. This Puerto Rican version is similar to how I cook them at home. 
Stay tuned for more posts in the Super Foods Series.