Why is Asthma So Feared By Food Allergic People

Five! You have had five reactions recently that have made me scratch my head, lose sleep and ultimately come to no conclusion as to how on earth these could have occurred. There was no food eaten within one to two hours of the reactions. The foods that were eaten I fed to you again after the reaction to ensure a new allergy did not develop or there was no cross-contamination. No reactions.

I continue to scratch my head and lose sleep. I have tried identifying patterns during these reactions. A few things come to mind. Majority occurred after exercise or when a big shift in temperature occurred.  But you exercise all day everyday and there are temperature shifts all the time. Hmm, well that is all I have come up with. Wait, there seems to be another pattern, the reactions have also occurred in spaces that are carpeted, four of which were not in our house. I have always correlated these reactions to trace amounts of allergens on hands that somehow ended up in your nose or mouth. Maybe it's something else. Maybe it's not.  After doing some digging - maybe it's asthma. Something in the environment you are allergic to and then it is set off by exercise or shifts in temperature.

And now, another reaction, this time, sudden and constant coughing and then wheezing. No vomiting this time. I give two puffs of the inhaler meds that Hopkins prescribed after discussing the recent reactions. The wheezing quickly subsides and the coughing slows. After 15 minutes the coughing dissipates. Could this be that these reactions that mimic food allergic reactions are actually asthma attacks?

ASTHMA - so scary as a parent of a child with many severe food allergies. Why though? Virtually ALL of the deaths that occur from food allergic reactions are in people that also have asthma.  And now we may be in the food allergic and asthmatic bucket.  Having asthma and controlling it either with functional medicine or conventional medicine is manageable and seemingly not that scary so long as you recognize symptoms and treat it.  When you layer on food allergies, it suddenly becomes something else.

So why are the people that have fatal food allergic reactions asthmatics? I can say every one of these five reactions mimics the beginning of food allergic reactions. Sneezing, coughing, wheezing, vomiting - that's how it all starts. So at that point in the reaction, if I guess it's airway distress due to asthma and give the inhaler, and I guessed wrong and we lose time, valuable precious time, that could be the difference between life and death. This is often the case for the fatal cases. The food allergic reaction was treated with asthma meds instead of epinephrine.

As your parent, I must learn everything I can about this in order to be able to quickly and effortlessly react in an instant. I must guess right every time. I must educate myself so I can educate others, most importantly you.  Jahan, as challenging as this journey is that we are on TOGETHER, I wouldn't change any of it.  While I do not enjoy seeing you in distress, I am thankful for the opportunities that all of this has brought to me. You are helping me learn so much, you have helped our family become so incredibly healthy, you have helped both daddy and I become much more understanding towards families with special needs. For all of this, we are thankful. 

Friends and Family - Your Guide to Food Allergies

With the holidays in full force that equates to food and parties and navigating to keep you safe!

It takes a village. I would love for others to be more understanding and less judgy - for example, I get lots of eye-rolls when I am incessant about hand washing, yes with soap and water pre-eating and post-eating, every meal and every snack. That includes others that probably ate/touched foods you are allergic to and then they touch you, play with you, share toys, phones, etc. Sadly, you have had a reaction simply from others not washing their hands properly after a meal.

At this point in the game, I DO NOT care what others think about the way I parent you. It is my duty to keep you safe, alive and thriving.  Although, it would be grand if others were more understanding. I did come across a nicely written piece that does define great pointers for grandparents, which carries over to family and friends. I encourage everyone that loves you Jahan, to read this.

• We’ve been told that “It takes a village” to raise a child and that certainly is the case for a child with food allergies.  As a grandparent, you naturally want the best for your grandchildren, yet the notion of a life-threatening allergy to an innocent food can be hard to grasp.
  
  If your grandchild has been diagnosed with food allergies, you must take this medical diagnosis very seriously. Even if he or she is one of the lucky ones who will eventually outgrow the allergy, it is crucial that you err on the side of caution.
  
  Leading pediatric allergist Dr. Robert Wood of Johns Hopkins explained that “One of the most common causes of reactions in allergic children is related to food being provided by the grandparents who never really understood or believed the notion that their grandchild had this severe food allergy.” 
  
  The good news is that studies have shown that when caregivers are trained in avoiding, recognizing and treating allergic reactions, the frequency and severity of these reactions decreases.   The following tips can help you to ease the burden on your loved ones and will enable you to become a more reliable caregiver.
  
  1.    Abide by their rules—even if you don’t understand them.  Since the day their child was diagnosed, your son or daughter has been learning a new way of life with severe food allergies. There are a lot of ambiguities and there is a lot of stress.  Assume that the parents know best.  You won’t get a chance for a “do-over” if your grandchild has a reaction.
  
  2.    Doctor’s orders  Let your grandchild’s physician handle his or her medical care.  Allergy parents are bombarded with hokey tips and media stories of treatments and cures involving everything from worms, to herbs, to acupuncture.  Some of this research is very promising but for now, assume your grandchild is in good hands with his current physician.                     
  3.    Engage but don’t overstep. I read once that grandparents are like pinch hitters. They need to sit on the bench until they’re called up. Allergy parents (especially after a recent reaction or diagnosis) often have a lot of anxiety over their child’s condition.  If you are asked and are able to help, fantastic. But unless you truly believe your grandchild is in danger, don’t suggest alternative ways of managing allergies.
  
  4.     Pick your battles!  Holidays are one of the most challenging times for allergy families. Prioritize. What is the most important thing about the holidays? As Suze Orman says “People first.”  Yes, you want to make your traditional nut braid and thumb print cookies, but believe me, you can have a festive and loving holiday without cookies, candy, mashed potatoes, even pumpkin pie. But you can’t have a glorious family holiday if one family is missing. So think and think again about what’s most important.
  
  5.    Phone Home Ask an allergy mom where the phone is when she takes a shower, and 99% of them will tell you that it’s right outside the shower door. Most of us have gotten that call about an allergic reaction at one time or another. And when we’re leaving our child with a caregiver, our fingers have a mind of their own and we need to make that call to check in.  So when you are caring for your grandchildren, keep your phone within reach at all times.
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• 6.    Serve it our way.  You may have a swell idea about how to reheat little Johnny’s dinner but you did not realize that they spray you just put in the pan contained dairy.  You saw Alicia eating strawberry sorbet last month. You didn’t realize that the brand you purchased is processed on lines with butter pecan ice cream. Daniel’s noodles tasted so bland, you thought you’d add a little seasoning, not realizing that it contains wheat. Well-meaning people who are not accustomed to living with food allergies can easily make a dangerous mistake and put a child at risk. Hidden ingredients and cross-contamination have caused serious, even fatal reactions. Do yourself a favor, and serve your grandchild only the foods that his parents have approved and serve them in exactly the way they’ve asked.
  
  7.    Emotions count  You may find yourself thinking that your son or daughter is going overboard with precautions or restrictions. Perhaps you believe that they could safely attend a family picnic, vacation or wedding. You may be right. But consider the family’s emotional heath and stress level, especially if the child was recently diagnosed. Sometimes the anxiety level in the home is so high, that it is just not worth all of the preparations and worry about an event.  Sometimes it’s better to decline a stressful invitation and keep the family safe and calm at home.  The emotional well-being of the family members is as important as their physical health.
  
  8.    Get support for yourself   Recently, my mother explained that a good friend of hers was a tremendous support to her after my son was diagnosed. I’m embarrassed to admit that I actually thought “Why would you need support?”  And then the light bulb went off and I realized that my mother, my son’s grandmother, had also gone through the myriad of emotions that follows a scary diagnosis. Once you really grasp the severity of this life-changing medical condition, it can be overwhelming. So if you find yourself feeling  sad, or scared or grieving about your grandchild’s condition, get the help and support that you need from friends, your spouse or a mental health professional. 
  
  These tips are not a substitute for learning about food allergies, and how to avoid, recognize and treat an allergic reaction. However, if you show the willingness to become an informed caregiver, you will go a long way in alleviating the stress and allowing your son or daughter some much needed time off duty. Your concern will nurture and strengthen your relationship with the entire family. Isn’t that what grandparenting is all about?

One more point I would like to make - 1) Do not pity Jahan - you are not a victim. You were made this way. Mommy and daddy are moving mountains to unravel and "fix" your immune system.  We will celebrate the holidays in the coming years without food allergies. Maybe not this year, but soon.

"How Do You Do It?"

Friends often ask me, "How do you do it?" Before I can answer, they often answer their own question, "I don't know how you do it."  I honestly don't know how I do it. What even is "it"...it's a lot.

Having a child with a chronic health issue is the most challenging thing I have ever gone thru and continue to go thru. Every day. Every party. Every play date. Every meal. Every label. Every bite. Every single damn ingredient. I would be lying if I said it's easy. It's incredibly challenging to be that parent.

You see Jahan, all I want for you is normalcy. I try so hard every day to fight for that. In your school, your classroom, with your friends, your family, at the table, at the restaurant.  I yearn for this for my baby.  We DO NOT believe in wrapping you in a little bubble, requesting food bans, which would impact so many others. Accomplishing this means, you are around foods so close in proximity to you, that it could do serious harm, as we have seen.  As your parent, I am trying to keep you safe, that means I feel the burden, the stress, the what-if.  Trying to educate others, I am often viewed as overbearing, overreacting, a helicopter mom and the list goes on, mostly negative. It is a hard journey.  Co-parenting is equally challenging.  Daddy and I will continue to be diligent in maintaining your safety and also your quality or life, including relationships and experiences.  Then there will be new challenges that OIT will bring. Many in fact. For starters:

• Will we all relocate to California? The thought of separating you from Emrys breaks my heart.
• Will we stay in Maryland and travel back and forth to California every few weeks for the duration of the treatment that takes years?
• Will you be successful with this treatment plan? Will we be successful?
• How will we manage your schooling while in treatment?

The list goes on and on. I don't know what we will do or how we will do it, but we will do it and you will ride off into the sunset, free from these shackles. 

Pregnant? What Your OB is NOT Telling You

You're tired. You're hungry. You're nauseous. You're late.

You're pregnant! Congratulations! Babies are the world's greatest gift and they provide endless joy and challenges. What happens when those challenges are health related and could have been prevented or been less extensive?  Well, from experience, it sucks and you then work to restore the baby's health.

When pregnant with Jahan, I followed the advice of my OB, she was board certified and it was her fiduciary duty to guide me to optimal fetal health. She prescribed me prenatals that were rather pricey, $100 for a month supply, and didn't provide any other recommendations. I would visit her monthly until I was 36 weeks along and then I visited her weekly until my son was born.

There was no other guidance from my OB, so I opted to do my own research.  Some things I learned included:

• There is a vaginal advantage versus a c-section. A recent study from the Canadian Medical Association Journal discusses this further.
• There is a clear advantage in breastfeeding versus formula feeding. Here are 18 breastfeeding benefits and here is a more scientific article that credits breast milk with a lot of positives. The immune system boost to the baby when breastfeeding is undeniable.  A simple google search will yield endless articles, scientifically backed showing the benefits of breastfeeding.

So shoot for a vaginal delivery and breastfeed the baby - easy enough. 

Once Jahan arrived and started showing baby eczema, we learned a lot of other things that we could have done while pregnant to ensure the highest immune system possible. My OB never shared these tips. Perhaps she didn't know. Maybe a new protocol could be to see a pediatrician or immunologist at week 20 of pregnancy. There has got to be a way to ensure pregnant mothers receive all information that may impact their baby. Some things to consider while pregnant:

• Avoid antibiotics while pregnant and get Group B Strep tested closer to delivery instead of at 35-37 weeks
• While pregnant, supplement with prebiotics and probiotics
• Ensure you are getting adequate Vitamin D
• Limit sugar intake while pregnant
• If a c-section is required, inoculate the baby with mom's vaginal flora immediately following the c-section delivery 

When pregnant with my second child, Emrys, I applied all of the above and he has had no immune system issues. His microbiome is flourishing.  He has had none of the complications Jahan has had and we also expose him to germs and dirt!