- What food will we pack for Jahan?
- Will we have a kitchen?
- Have we considered all the precautions at the airport and on the airplane?
- What will he be able to eat at the restaurants?
- Will the restaurants be able to accommodate his multiple allergies?
- Did I research all the restaurants and call ahead to speak with the chef and manager(s)?
- How and when do we break it to the others in our group that they are important players in the game of keeping Jahan safe and reaction free?
- Will they have stores nearby to restock should we need more Jahan safe food?
- How close are the nearest fire stations, hospitals, etc. should he have a reaction?
And the list could go on and on - the squeaky wheel gets all the damn grease! What I mean by this is Jahan usually gets most of my attention in planning for a trip that often I forget something for Emrys - never fails me.

My mantra for Jahan is that he may have a restricted diet, but he will not have a restricted life. We will actively participate in everything - Jahan goes to a group setting school, has a better social life than most 30-somethings, has stamps in his passport and will be going on his sixth vacation this summer. Isolation does not work for us. Here is to an amazing reaction free weekend with wonderful people and not forgetting any of Emrys's things! Let the memory making begin!
No comments:
Post a Comment